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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 288 Location: LUTON
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I moved house on the 15th June from Luton beds, to Spalding Lincs, I had an appointment with the consultant and bloods done picked up jabs ,this was a week after the move, consultant said it was not a prob, and that once i saw a gp they would refer me to Rheumy dr, ha its taking me 3 weeks to see gp that will be this Friday, the gps set up an appointment with the rhuemy consulatant, that will not be until 20 something Sept .
I will be 6weeks short of injections, what a pain, i now have to contact rheumys sec to ask for him to write and send px/ blood results to see if they will give jabs without seeing the new Rheumy, dont it make you sick.
I was told if i was willing to travel to a hosp further away the may be able to do it sooner but once i have done that, i will have to attend that hosp, as i dont drive its just not on.
I think the nurse this end said that i will be having mtx droped off to the door, this will all be new to me as i used to pick up from Luton/Dunstable hosp.
anyone on here atted the pilgrim hosptial in Boston Lincs?, any advice would be good.
I have offered to have tablets although they make me so sick!! i would cope for a few weeks.
Thanks Anne - m xx
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Rank: Advanced Member  Groups: Registered
Joined: 9/3/2011 Posts: 717 Location: Torbay
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What a nuisance for you. Once we get going on a drug and it's working and suits us the last thing we need is disruption. I do hope there is some way around this issue. I sympathise with the dilemma over the oral Mtx because it made me feel too nauseous to continue with it. If I were in your position though I'd take them in the short term in order to avoid interruption to the Mtx regime. Let us know if you manage to resolve this. Naomi X
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Rank: Advanced Member  Groups: Registered
Joined: 9/13/2010 Posts: 786 Location: east anglia
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shocking really is,why can't they get you sorted asap,sounds like no one can be bothered with the paper work,keep at them, i hope you can persist with the tabs, keep us posted,dorothy
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Rank: Newbie
Groups: Registered
Joined: 7/31/2012
Posts: 1
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Hi MB,
I just wanted to add some words of support. My experience in moving away from the team that I had been with since diagnosed was tricky,
It took time for me to trust the new people and for them to get to know me, particularly my habit of saying I was fine when I wasn't.
I think that you can get methotrexate injections delivered by the company that deliver my enbrel. If you have to take MTX by mouth
for a while, see if you can split the dose over the week. I used to take half the dose midweek and half the dose at weekend, that helped
a lot with the sickness.
I really do believe that there has to be more joined up thinking for peoples care, when you have a long term condition and move house.
Best of luck.
x
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Rank: Advanced Member  Groups: Registered
Joined: 1/21/2012 Posts: 388 Location: Powys
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Hi I've recently had problems getting my mtx inj. Mine are delivered by Health Care at Home to my door, supposedly every 4 weeks, as I expect many peoples are.
As I hadn't had confirmation of my next delivery, I started to ring them. My last delivery was 6 weeks ago and during the last 3 weeks I've rung many times, each time being told that they have not received a prescription from my rheumy hospital and each time saying that they would get in touch and ask again for one. During this time I have taken tabs which fortunately I still had enough of inspite of side effects. As a last resort I rang my rheumy nurse yesterday and left a message asking her to speak to the pharmacy to get the prescription sorted. Immediate success, she said that pharmacy had not received a request from H.C.A H. for a repeat prescription and she has asked them to send a prescription asap. So whose at fault I haven't a clue but obviously if I hadn't got in touch with my nurse I could have been waiting for ever!! Just waitng now for H.C.A.H. to set a delivery date.
So I can understand what you are going through Ann, we just do not need this stress with everything else. Hope you do manage to get something sorted soon. Zena x.
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Ann-Marie I hope you were able to sort out the predicament with the methotrexate and the 'gap' was covered by oral medication if needed. Moving house is always going to be difficult for those of us with specific medical needs so hope things have been fairly straightforward for you and you are now settled with a new rheumatology team. I just wanted to raise something that was mentioned in the reply from 'caketiger'. Splitting doses of Methotrexate as described would not be the standard way of taking this drug. It is usually prescribed to be taken as a single dose once a week on the same day each week. In certain circumstances it can be split providing doses are taken within a 24 hour period. However, the advice of the rheumatology team prescribing the drug should always be followed, and, if you are thinking of making any changes to the way you take your medication you should discuss this with them first. It's worth ensuring, for peace of mind, that you always have a couple of weeks supply of drugs available to you. This will cover emergencies or times when the system doesn't quite come up to par! Lyn x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 288 Location: LUTON
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Hi Lynn, Guess what i am having to travel to Luton from Lincolnshire yet again, we do have family there, so its not so bad but its 1hr and half of peak travel, Hubby and i picked up 8jabs in one go on Tuesday, hopefully when i go for my appointment end Sept they will be able to sort out jabs quick, i will have to travel to Boston hosp i think once i have seen the consultant there,i will be getting MTX direct to the door?
Its been a big pain in the butt,lol lol The gps here only supply 1mths meds at a time, old gp [of 27 yrs} used to write 3 mths.I think they get paid for every one the write?
Must away now, Chat soon.
Anne-m xx
p.s we love it here in Lincs.
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